Non-celiac gluten sensitivity (NCGS) or non-celiac wheat sensitivity (NCWS)

Q: Can you address non celiac gluten sensitivity (NCGS)? How is it diagnosed? What are the symptoms of NCGS?  What are possible complications with NCGS vs celiac disease? What is the treatment? Non-celiac gluten sensitivity, also called non-celiac wheat sensitivity (NCWS) is a much-debated, poorly understood, and intensely researched condition in the celiac scientific community. The term NCWS also includes …

Support for a low FODMAP diet

Q: I have celiac disease and follow the gluten-free diet. I also have irritable bowel syndrome (IBS). Where can I find online support for following the Low FODMAP diet? First, a very brief review of the Low FODMAP Diet:  Irritable bowel syndrome (IBS) can be a co-existing disorder found in patients with celiac disease and other diseases where the motility …

Interpreting a high IgG and negative IgA test result.

Q: If someone [with celiac disease] has a positive (high) IGG result and a negative IGA result what does that mean? In short, not much. To answer this question, let’s assume that the question is referring to the IgG antigliadin antibody (IgG-AGA) and the IgA antigliadin antibody (IgA-AGA) tests.  These two anti-gliadin antibody tests were the first tests developed for …

Ancestry type testing for celiac genes

Q:  My daughter was diagnosed with celiac disease by biopsy over 20 years ago with symptoms that resolved on a gluten-free diet. She recently found out through one of the “ancestry-type” site’s testing that she doesn’t even have the gene for celiac disease. How can this be? She’s now trying a bit of gluten and not experiencing any side effects. …

Follow Up Care

Q: I have a confirmed diagnosis of celiac disease (CD). Do I need to see a gastroenterologist (GI doctor) for ongoing follow-up or can I just see my primary care provider regularly? It is not clear from the research who should monitor the follow-up of patients with CD and how often.1  Various studies have remarked on follow-ups with primary care …

Silent Celiac Disease

Q: What is silent celiac disease? In 2013 a multidisciplinary task force of 16 physicians from seven countries published an article evaluating the numerous celiac disease (CD) related terms that exist in the literature.  The team determined that “silent CD” is equivalent to “asymptomatic CD.”  Use of the term silent CD is now discouraged.1 So, let’s take a look at …

Following GF diet but feeling unwell

Q: What should I do if I have confirmed celiac disease and follow a strict gluten-free diet but am still unwell? There are several reasons why a person with celiac disease might have symptoms despite following a gluten-free diet. The first one is the most common – either accidental or intentional gluten exposure.1 Gluten exposure accounts for about 7-30%2 of …

Appointments with a registered dietitian

Q: How frequently should I see a registered dietitian? And why? If you are diagnosed with celiac disease, both the Academy of Nutrition and Dietetics and the National Institute of Health recommend consults with a registered dietitian nutritionist (RDN) skilled in celiac disease.1,2 The NIH recommends continuous long-term follow-up by a multidisciplinary team, including an RDN1  but does not offer …