Celiac disease organizations seek help for Ukranian child

By Lee Graham and Jennifer Iscol 

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Daniel is two years old and has celiac disease. Although celiac disease can be treated and is often well controlled with a strict gluten-free diet, Daniel's health is still in peril. He is Ukrainian and lives near the capital Kyiv with his parents, Kateryna and Alexander. 

Daniel has been hospitalized multiple times, even before Russia invaded Ukraine in February this year. The family is in frequent physical danger from the war. Daniel’s complex case requires a specialist in celiac disease care while scarce medical resources are devoted to treating the wounded. 

Exciting news! On November 20, Daniel and his family arrived safely in the United States from war-torn Ukraine! Kateryna plans for Daniel to be cared for at the MassGeneral for Children Center for Celiac Research and Treatment.

“Thanks to the outreach efforts of the Celiac Community Foundation of Northern California and the National Celiac Association, we became aware of the family’s situation. It is part of our mission to support and educate individuals with celiac disease and their family, including Daniel and his mother who are in a very difficult situation,” says Susie Flaherty, MA, ATR-P, communications director for the Mass General for Children Center for Celiac Research and Treatment. 

Under the U.S. government’s program Uniting for Ukraine, private citizens can make it possible for Ukrainian families to find safety in the United States by becoming their sponsor. Daniel’s story touched the hearts of a kind couple in New Hampshire, who are the family’s U.S. sponsor under the Uniting for Ukraine program. They learned of Daniel’s story on Gluten Free Watchdog’s Facebook page. Our dedicated community is having a real impact. Thanks to everyone for your interest in helping the family!

Like many Ukrainians, Daniel's parents lost their jobs after the Russian invasion of Ukraine in February 2022. Under the Uniting for Ukraine program, the family is eligible to apply for health insurance, food assistance and other benefits, as well as employment authorization. The parents are eager to find refuge, stability, volunteer work and ultimately employment in the United States.

The Celiac Community Foundation of Northern California learned of Daniel's case and reached out to its longtime partners in the Boston area, including the National Celiac Association and the Center for Celiac Research and Treatment at Mass General for Children. The organizations previously worked together to form a Gluten-Free Disaster Relief Task Force and on disaster preparedness following U.S. hurricanes, wildfires and mudslides.

Catholic Charities Boston is another member of our “team” and ready to provide resettlement services, including guidance in applying for a work permit and for benefits such as health insurance and food assistance. Catholic Charities implements a "Welcome Circle" model and provides toolkits to help all the individuals and organizations supporting and assisting a Ukrainian family coordinate their efforts. 

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How can I help?

A sponsor has been found! 

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Settling in: Do you live in the Boston area and may be able to help the family settle in in the Boston area? Contact Lee Graham at lee@nationalceliac.org to be put on a list and we will update you with their needs. The family may need assistance with public transportation, grocery shopping, donations of household items, nursery school, friendship and play dates, etc.

Share a message of support: Click here to share a message of support with Daniel's family on the Celiac Community Foundation of Northern California's website.


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FAQs

How is the U.S.government helping Ukrainian refugees?

On April 21, 2022, the administration announced Uniting for Ukraine, which allows Ukrainians fleeing the Russian invasion of their country to seek refuge in the United States for up to two years. Under the program, Ukrainians are classified as “humanitarian parolees” rather than refugees. While this status streamlines their application and allows them to escape the war more quickly, it makes them ineligible for federal resettlement benefits designated for refugees. This provides a unique opportunity for individuals and the community to step in and help.

What does it mean to become a U.S. sponsor/supporter for Ukrainians fleeing the war?

Individual U.S. residents have an essential role. Ukrainians must rely on the kindness of everyday Americans to enter the country and resettle here. To apply for entry under Uniting for Ukraine, Ukrainians need to find a U.S. sponsor, a private resident who agrees to provide financial support to meet basic needs for two years. Learn more about  becoming a “sponsor” or “supporter” (the terms are used interchangeably) on Welcome.US. More info: USCIS and DHS.

How is the celiac community helping?

We are helping match Daniel’s family with a U.S. sponsor and reducing the burden on the sponsor by ensuring that the family and sponsor are assisted by the community with a “Welcome Circle.” The family will need assistance with applying for health insurance, benefits and employment, and general support to settle into life in the United States. We also hope to inspire others and spread the word about how to assist refugees.

How can we help other Ukrainian or Afghan refugees?

If you are interested in learning more about sponsorship of a Ukrainian individual or family or welcoming and assisting Afghan refugees, go to Welcome.US. We are also happy to talk with you about our experience. While we have limited resources and the need can seem overwhelming, working together we can help refugees and provide hope.

Authors

Lee Graham, Executive Director, National Celiac Association

Jennifer Iscol, President, Celiac Community Foundation of Northern California

Media Inquiries

Lee Graham at lee@nationalceliac.org

Photos: Top: Daniel in front of his mother, Kateryna. Middle: Daniel with his parents Alexander and Kateryna.

Note: This article is co-published on the website of the Celiac Community Foundation of Northern California.