Resources for somebody newly diagnosed with celiac disease

Katarina Mollo MEd, RDN, LDN
Q: I was just diagnosed with celiac disease. What resources do you have to learn more about celiac disease and the gluten-free diet?

Answer


We have some great resources available that will help you learn more about celiac disease and get you started on the gluten-free diet.

For general information about celiac disease, I would recommend checking out our free course Going Gluten Free: Off to a Fresh Start. This course gives a very good overview of celiac disease, other gluten-related conditions, as well as the gluten-free diet.

This course covers:

  • Celiac Disease (CD) & Other Gluten-Related Conditions - Symptoms, complications, diagnosis, treatment
  • The Gluten-Free (GF) Diet - Foods allowed/not allowed, oats, hidden sources of gluten, reading labels and product research
  • Lifestyle Changes - Emotional challenges, sharing a kitchen, eating out, traveling
  • Support & Resources - NCA resources, web links

Going Gluten Free: Off to a Fresh Start is available in a narrated version on our website anytime. We also run several Live Webinars throughout the year. Check out our next Live Webinar here.

For a quick snapshot overview of celiac disease and the gluten-free diet download our Quick Facts brochure. This is also great to give to family members so they can learn more about celiac disease.

Note that these resources only give you a general overview. I also recommend that you work with a dietitian to get you started on the gluten-free diet, as they can tailor it to your specific needs and answer any questions you might have. Seeing a dietitian skilled in celiac disease and the gluten-free diet upon diagnosis is an important step in your recovery. Read more about how to find a dietitian here.

It is also important to see your doctor for regular follow-ups to monitor your healing, as well as check for any other conditions or nutrient deficiencies related to celiac disease. Learn more about how to find a doctor here.

Connect with our support network!

Finding and connecting with others that have celiac disease can be very helpful, especially if you are struggling to get used to the gluten-free diet. Research has found face-to-face social support networks to increase quality of life scores for people with celiac disease (1). We have some great support in our gluten-free community with groups throughout the nation to help you get adjusted to a gluten-free diet. You can search for a support group or Resource Person near you here.

We also offer a virtual support group every second Tuesday of the month that can be accessed from anywhere. Check it out here.

Finally, you should check out all the great resources on our website, such as restaurants and gluten-free recipes.

For those with children and teens with celiac disease or other gluten-related conditions, check out our Raising Our Celiac Kids - ROCK website for information geared toward kids, as well as our newly diagnosed course for parents and caregivers, Gluten Free in 1,2,3.

Reference:

  1. Lee AR, Wolf R, Contento I, Verdeli H, Green PH. Coeliac disease: the association between quality of life and social support network participation. J Hum Nutr Diet. 2016 Jun;29(3):383-90.

Note: This information is provided by NCA and Katarina Mollo MEd, RDN, LDN, NCA's Director of Education. This information is meant for educational purposes only and is not intended to substitute for personalized medical advice or replace any medical advice provided directly to you by your health care provider. No liability is assumed by the NCA or Katarina Mollo, MEd, RDN, LDN by providing this information.

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