From the Experts: All Things Celiac

The National Celiac Association and the Celiac Research Program at Harvard Medical School are co-hosting a series of 75-minute virtual meetings. Speakers present on selected topics for 60 minutes, followed by a 15-minute question-and-answer period.

For live technical support during the webinars, please call 857-282-6470 or email: digitalmedia@partners.org

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Elite and Everyday Athletes with Celiac Disease: Eating for Fitness at All Ages

Join the National Celiac Association (NCA) and the Harvard Medical School Celiac Research Program for the fourth webinar in our Spring 2022 "All Things Celiac" series. Speakers will present on selected topics for 60 minutes, followed by 15 minutes for Q&A, on Thursday, May 19, 2022, from 1- 2:15 pm ET.

Whether you’re an elite athlete, a weekend competitor, or you enjoy an evening stroll, leading an active healthy life is important for everyone, including those with celiac disease. Join board-certified sports dietitian Mary Ellen Kelly, MS, RD, CSSD, LDN, and Tara McCarthy, MS, RDN, LD, Clinical Nutrition Supervisor at the Celiac Disease Program at Boston Children’s Hospital, as they talk about fueling our bodies throughout the day and eating the right foods to sustain us through physical activity. Concerning signs of celiac disease in pediatric patients, such as repeat injuries, fractures, and low bone density, will be addressed. Caroline Johnson, a Division 1 distance runner at Lafayette University living with celiac disease, will share her experience managing the gluten-free diet while competing at the college level.

Lee Graham, executive director of the NCA, will introduce the webinar, and Samuel A. Frank, MD, a neurologist at Beth Israel Deaconess Medical Center and Associate Professor of Neurology at Harvard Medical School, will moderate the session. A Q&A session will follow the presentations; please submit general questions when you register or during the webinar on the Zoom platform.

Continuing Education Units (CEUs): This course (220323-RSS) is approved by the Boston Children’s Hospital’s Continuing Education Department for 1.25 AMA PRA Category 1 Credits ™ for physicians, 1.25 contact hours for nurses, 1.25 ACE CE continuing education credits for social workers, and 1.25 CEUs for Registered Dietitians. Instructions on how to access CEU certificates will be emailed to webinar attendees following the event.

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Aging Well with Celiac Disease

What are the specific medical needs and concerns of a person living with celiac disease as they age? What nutritional deficiencies are more common in the older adult and how can we address them? How shall we approach long-term care for the best outcome? Joseph Murray, MD, expert celiac gastroenterologist and Professor of Medicine, Mayo Clinic College of Medicine and Science, and Katarina Mollo, MEd, RD, LDN, Director of Education for the National Celiac Association delved into critical questions that affect each and every person living with celiac disease.

Lee Graham, executive director of the NCA, introduced the webinar, and Ciarán P. Kelly, MD, Director of the Celiac Center at Beth Israel Deaconess Medical Center, moderated the session. A Q&A session followed the presentations.

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Living with COVID-19: Celiac Disease, Autoimmunity, and Hyperinflammation

Will the pandemic ever end? And what are the long-term effects (if any) for someone living with celiac disease or another autoimmune disorder? What COVID-19 treatments are safe for people with celiac disease and are all masks safe for people with gluten-related disorders?

Two expert authors and clinicians with decades of experience answered new questions about COVID-19, celiac disease and autoimmunity: Alessio Fasano, MD, Director of the Center for Celiac Research and Treatment at Massachusetts General Hospital in Boston, Massachusetts; and Dr. Steven Plogsted, BS, PharmD, BCNSP, CNSC, FASPEN, Clinical Pharmacy Specialist (retired) at Nationwide Children’s Hospital in Columbus, Ohio.

Lee Graham, executive director of the NCA, introduced the webinar, and Dan Leffler, MD, MS, a gastroenterologist and co-founder of the Celiac Center at Beth Israel Deaconess Medical Center, moderated the session. A Q&A session followed the presentations.

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Celiac Disease and Your Reproductive Health

Are you pregnant, thinking about starting a family, or caring for an infant? 

How does celiac disease—treated or untreated—affect the reproductive health of both women and men? Fertility, pregnancy, and childbirth are some of the topics addressed by Maureen Leonard, MD, from the Center for Celiac Research and Treatment, Massachusetts General Hospital, and Amelie Therrien, MD, and Marcela Banegas, MD, from the Celiac Center at Beth Israel Deaconess Medical Center (BIDMC). They reviewed the latest data on celiac-related symptoms and the impact on the quality of life in patients with celiac disease during pregnancy and how genetics might contribute to the development of celiac disease.

Lee Graham, executive director of the NCA, introduced the webinar, and Dascha Weir, MD, Clinical Director of the Celiac Disease Program at Boston Children’s Hospital, moderated the session. A Q&A session followed the presentations.

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Open Mic: Ask the Docs and Dietitian

In this special Q&A webinar, experts spent 75 minutes answering your general questions on celiac disease and gluten-related disorders. The webinar was held on Wednesday, December 15, 2021, from 1:00 to 2:15 pm ET.

Our expert speaker panel included Denis Chang, MD, pediatric gastroenterologist in the Division of Gastroenterology and Nutrition at Boston Children’s Hospital; Rupa Mukherjee, MD, attending gastroenterologist in the Celiac Center at Beth Israel Deaconess Medical Center; and Pam Cureton, RD, LDN, registered dietitian with the Center for Celiac Research and Treatment at MassGeneral Hospital for Children (MGHfC) and the University of Maryland. Lee Graham, executive director of the NCA, introduced the webinar, and Mark Salvatore, MD, pediatric gastroenterologist at MGHfC, moderated the session.

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Beginnings and Endings: Gluten-Free Holiday Appetizers and Desserts

On November 17, 2021, Executive Chef Denise Herrera from Burtons Grill & Bar and Lee Graham, Executive Director of the National Celiac Association, cooked up some new gluten-free holiday favorites. The theme was Beginning and Endings, with starters of butternut squash soup topped with rum buttercream and chives, an antipasti board, and smoked trout dip with homemade crackers. Featured desserts were butterscotch pudding with cookies and chocolate whoopie pies with raspberry cream. Suggestions included substitutions for lactose-free and other dietary needs.

Click here to view the recipes.

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Dermatology and Celiac Disease: Did Gluten Cause this Rash?

A range of dermatological features have been associated with celiac disease and gluten-related disorders, including Dermatitis Herpetiformis, eczema and psoriasis, to name a few. Attendees learned about the connection between the largest organ in our body and celiac disease and non-celiac gluten sensitivity in children and adults. “Celiac Disease and Your Skin” was presented by Channi Silence, MS, a research fellow at Massachusetts General Hospital under the mentorship of Shadi Kourosh, MD, MPH, board certified dermatologist and Assistant Professor of Dermatology at Harvard Medical School. Dr. Kourosh answered the Q & A along with Sophie Delano, MD, Instructor of Dermatology at Harvard Medical School, who presented “Recognizing & Treating Cutaneous Symptoms of Pediatric Celiac Disease.”

Lee Graham, executive director of the NCA, introduced the webinar and Alessio Fasano, MD, founder and director of the Center for Celiac Research and Treatment at Massachusetts General Hospital, moderated the session.

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The Intersection of Neurology and Celiac Disease

A range of neuropsychological features have been associated with celiac disease, including headaches, ataxia (coordination problems), peripheral neuropathy (numbness, tingling or pain from nerve damage), cognitive challenges, and "brain fog," to name a few.

Samuel Frank, MD, a neurologist at Beth Israel Deaconess Medical Center and Associate Professor of Neurology at Harvard Medical School, and Benny Kerzner, MD, medical director of the Celiac Disease Program at Children's National Hospital, led the discussion. Attendees learned about the connection between our nervous system and celiac disease in pediatric and adult patients as well as non-celiac gluten sensitivity.

Lee Graham, executive director of NCA, introduced the webinar, and Alan Leichtner, MD, pediatric gastroenterologist in the Boston Children's Hospital (BCH) Celiac Disease Program and Chief Education Officer and Director of the Department of Education at BCH, moderated the session.

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Research Roundup: Promising Novel Therapies for Celiac Disease

Three expert gastroenterologists demystify the complexities of clinical drug trials in gastrointestinal diseases and present the latest research in medical therapies for celiac disease.

Jocelyn Silvester, MD, PhD, from Boston Children's Hospital; Amelie Therrien, MD, from the Celiac Center at Beth Israel Deaconness Medical Center (BIDMC); and Alessio Fasano, MD, from the Center for Celiac Research and Treatment, Massachusetts General Hospital, include highlights on current research for evidence-based medical treatments for celiac disease.

Lee Graham, executive director of NCA, introduced the webinar, and Ciarán Kelly, MD, medical director of the Celiac Center at BIDMC, moderated the session.

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Gluten-Free Farm to Table: Delicious, Nutritious and Affordable Options for Whole Food

Straight from a farm’s greenhouse on Cape Cod, registered dietitian Nicole Cormier introduced us to this spring’s highlighted seasonal produce found at your local farmers’ markets along with simple, unique ways to prepare them. Nicole shared how local and seasonally grown food benefits your own microbiome and our environment and how to create your own kitchen or outdoor herb garden featuring easy to grow medicinal and culinary herbs.

Chef and former food editor of Bon Appétit, Kristine Kidd demonstrated easy cooking techniques for three delicious and nutrient-rich grains, enhanced with vegetables, fruits, and herbs that add diversity and flavor to the gluten-free diet. After learning these simple techniques, you’ll be cooking an endless variety of easy, elegant and gluten-free meals with the confidence of a backyard garden gourmet chef.

Lee Graham, Executive Director of the National Celiac Association, introduced the webinar and Melinda Dennis, MS, RDN, LD, Nutrition Coordinator of the Celiac Center at Beth Israel Deaconess Medical Center, moderated the session. 

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Read the Q&A from this webinar!

View Nicole Cormier, RD, LDN's recipes here

View Kristine Kidd's recipes here


Get the Facts on COVID-19 Vaccines and Celiac Disease

Addressing the COVID-19 pandemic requires understanding variations in the human immune system, how different groups are affected by the virus, and how we can leverage science to develop targeted vaccines to protect us.

On March 25th, Dr. Ofer Levy, Director of the Precisions Vaccine Program in the Division of Infectious Diseases at Boston Children's Hospital, and Dr. Lael Yonker, pediatric pulmonologist and co-founder of the Pediatric COVID-19 Biorepository at Massachusetts General Hospital, led the discussion to help attendees understand what is known about the COVID-19 virus today and how new developments will help to contain community spread of the virus.

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Click here to read the Q&A from this webinar.


More Than Celiac Disease: Managing Multiple Autoimmune Conditions

Managing celiac disease presents unique medical, emotional and social challenges; having more than one autoimmune disease in an individual or family requires additional coping skills.

On February 11th, Dr. Edwin Liu, Director of the Colorado Center for Celiac Disease, and Janis Arnold, MSW, LICSW, licensed social worker at Boston Children’s Hospital presented a compelling session on science and social support.

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A New Perspective: The Psychology of Dealing with a Chronic Disease

Optimum health for people with celiac disease includes good mental health. Sarah Ballou, PhD, director of Gastrointestinal Psychology Services at Beth Israel Deaconess Medical Center, discussed what is known and still unknown about mental health conditions among children and adults with celiac disease and how celiac disease affects health-related quality of life at diagnosis and after starting the gluten-free diet. Mary Shull, MD, pediatric gastroenterologist at Children’s Hospital Colorado, shared how gastrointestinal psychology treatment, including cognitive behavioral therapy, is used in celiac disease as well as hands-on breathing techniques that can help common gastrointestinal symptoms.

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How Good Nutrition Feeds Our Bodies and Minds

Celiac disease dietitians Tara McCarthy, MS, RDN, LDN, of Boston Children’s Hospital; Pam Cureton, RDN, LDN, of Massachusetts General Hospital; and Melinda Dennis, MS, RDN, LDN, of Beth Israel Deaconess Medical Center showcased the nuances of gluten-free food labeling and highlighted important nutrients, explained how to optimize the gluten-free diet when faced with other food restrictions, and shared tips on how to enhance your diet and lifestyle for optimal digestion and health.

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Cooking Gluten Free with Demonstrations and Holiday Inspirations

On October 22nd, Denise Herrera, Executive Chef and VP of Food and Beverage for Burtons Grill and Bar, shared cooking skills and tips on using gluten-free bread products to create holiday food favorites, including crab-stuffed mushrooms, versatile soup stock and herbed croutons, holiday gravy, and bread pudding. Lee Graham, Executive Director of NCA, co-hosted with Chef Herrera.

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From the Experts: Latest Guidance on COVID-19 and Celiac Disease

On Wednesday September 23rd, Dr. Jonathan Li, director of the Harvard University Virology Specialty Laboratory, presented "An Update on the COVID-19 Pandemic" and Dr. Alessio Fasano, director of the Center for Celiac Research and Treatment at Massachusetts General Hospital presented "Impact of COVID-19 on Celiac Patients." The Q&A moderator was Dr. Alan Leichtner, director of the Celiac Disease Research Program at Boston Children’s Hospital.

Read the Q&A from this webinar!

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